logan bird
As writen by Logan's mother:
Logan was born on 8/30/03 at 39 weeks of pregnancy with some jaundice, but appeared to be a healthy plump 8 pound 14 ounce baby boy and was allowed home with a bili-blanket to treat the jaundice. He had a raspy voice, and was examined by an ENT specialist as suggested by the hospital. The Dr. determined that Logan had paralyzed vocal cords due to some birth trauma, which he felt would resolve in time. Luckily it did resolve within a couple of months. Logan looked directly at me and smiled at around 2 months of age (I luckily got that one on camera), but he slowly lost touch with the world, and we began to see that Logan had some serious neurological issues. Within a few months we began to notice he stared at lights all the time, and did not smile at us, or even notice us as time went on. He began to stim with his hands non-stop, at one point they tested him for Rhett syndrome (normally found in girls) because of this, but he showed negative for it as well as numerous other genetic tests. He began traditional therapy services at 7 months of age when he received a diagnosis of static encephalopathy. Further testing has not shed light as to why he is not developing normally. He has symptoms of CP, autism and cognitive delays.
Logan sat at 11 months, but lost the ability not too long after his 12-month vaccinations. He gained the ability back at a little over 2 years of age, 3 months after starting B complex shots and brain formula supplements. He has had several non-traditional Dr.’s say they feel vaccinations more than likely caused him to be like this, and I agree they either caused this or aggravated a condition not yet discovered. I heard about Ocean Hyperbaric Oxygen Center and Therasuit Therapy, and scheduled an appointment to talk to the Doctors at Ocean Hyperbaric Oxygen, and knew I had to do this for Logan by the end of that appointment. Upon getting his first set of 40 treatments, Logan began to independently drink from a sippy cup, once placed in his hands. Logan has never used his hands for anything purposeful, so this was a huge gain for us. We went back for 40 more HBOT treatments a few months later, and he is still gaining strength and stability. He looks at everything now, and follows children as they move around. Before he was oblivious to them. He also is taking steps (although still pretty wobbly) when supported at his forearms, something before he was not able to reliably do. He is able to sit for up to 30 minutes now with minimal assistance. He is able to figure out small puzzles, but needs lots of help physically to place the pieces. He looks at the piece and where it goes, but takes great effort and some assistance supporting the weight of his arm so that he can move the piece where it needs to go. His motor skills definitely have limited his ability to progress.
Logan has responded well to patterning and exercises that he had gotten in his ABA therapy (a type of behavioral therapy which was modified for Logan to contain many physical and occupational exercises in addition to traditional ABA therapy). He no longer qualifies for this service since he turned three, but I’ve learned the exercises, and still do them for him and trying to find a way to continue to pay for this service at least at a reduced frequency. It is truly a shame that the things that have most helped Logan are not covered by insurance. I used to think if you had insurance you had no worries of getting adequate care, now I know differently. Intensive Pediatric Therapy in conjunction with the TheraSuit has a very real potential to help him progress to the next level, I sincerely believe that. I’ve already been shown that the 1 ½ hours of exercises and patterning have helped, I have no doubt that an intensive session of Therasuit therapy for Logan will help even more. Unfortunately, our funds are limited at this point, so any help that can be provided for Logan to participate in this therapy would be much appreciated.
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