McKenzie
As writen by McKenzie's mother:
McKenzie Michelle Carey was born on April 20,2002. I had a normal
pregnancy and a normal delivery. McKenzie was a beautiful baby girl
who was perfectly healthy, we thought. Everyone kept telling me something
was wrong, but as a mother I didn't want to believe it. When McKenzie
was two months old we noticed her looking up at the ceiling all the
time. She would not focus her eyes on anyone or anything. We first
thought she may be blind. We had her vision tested and her vision
was perfectly normal. I kept taking her to her pediatrician for her
regular checkups and he said she was a floppy baby. Which meant she
had very little if any muscle tone. At that point he sent us to a
neurologist. The neurologist knew something was wrong with our precious
angel, but he wasn't sure what it could be. Kenzie's neurologist sent
us for MRI's, Cat Scans and all kinds of blood tests. Still no diagnosis.
A week before McKenzie turned one, we had to rush to the emergency
room because she had a 104.9 temp. They said it was just a virus and
sent us home. 4 days later she started having seizures and was admitted
into Scottish Rite, where we spent 22 days. She had over 80 Seizures,
12 the first day. Still they had no idea what caused her seizures.
They performed MRI's, Cat Scans and of course, more blood tests. Still
no diagnosis. The geneticist came in and started talking to us about
a possibe mitochondrial disease. At that time we had never heard of
it and had no idea what it meant or how serious it was.The only way
to detect a mitochondrial disease is through a muscle biopsy, which
they decided to do. It took about three months for the results to
come in and we were terrified. We finally got a call from the geneticist
and after all this time we now have a diagnosis, MITOCHONDRIAL DISEASE.
We still knew very little about the disease. We did alot of research
on this disease and found out all of her major organs can be affected
with this disease. She could possibly lose her hearing and her eyesight.
We thougth there was no hope until now.
Miracle in the making
My chiropractor knew someone who knew about mitochondria and possible treatment. I called her and she told me about a lady who lives in Macon, GA. that has a daughter with a mitochondrial disease. I immediately called her and what she told me was amazing. She told me about treatment in South Florida that saved her daughter's life. At this point I was excited because this was the first time since my daughter was diagnosed that I had hope for her. I was ready to fight this disease. It was not going to take my daughter. This treatment consists of Hyperbaric Oxygen Therapy combined with Intensive Pediatric Therapy. This little girl had 107 treatments and she can now run, talk and she can feed herself. This treatment is very expensive and insurance don't cover it because they consider it experimental, but we have to try it. What other choice do we have? We immediately started raising money. There is nothing we wouldn't do for our angel. Please help save our daughter's life.
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