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Isabella Cox

 

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Hi i wish to register my daugter isabella grace cox, not sure what other nformation you need

Isabella was born on the 20 february 2006 in the united kingdom where both my parents work as police officers. Isabella went home from hospital and all appeared fine. However she wouldnt feed and i used to have to syringe milk into her mouth. When she was six weeks old she got admitted to hospital becauseshei still wasnt feeding and they could hear a heart murmour. Once in hospital she was diagnosed with two holes in the heart and was put onto two different types of medication to help. Isabella still woudnt eat and was given a naso gastric tube, a couple of weeks after this she started fitting at home and was soon diagnosed with epilepsy, this was very unstable for the first year of my life and i spent most of this time in hospital, thankfully this has stabililsed out with medication but can be easily triggered by the smallest cough or temperature so teething has been a really rough time.

When isabella was one year old she had a gastro tube fitted into my stomach as i still would not eat or take anything orally. When i was two years old i was diagnosed with a rare chromosone disorder that does not have a name but means part of my chromosone two is missing. Isabella is also registered blind.

Isabella is now four years old and is still not feeding and can not sit up or hold my head, She suffers from infections and struggles to fight them off where she is so weak. Most winters she ends up hospitalised and has had menigitus and has had severe pneumonia on more than one occasion. This winter she took a turn for the worse and i was told to prepare myself for the worst. Isabella is a fighter and pulled through. We know isabella is capable of so much and we just want to give her every opportunity to have the happy life she deserves and this treatment is the biggest chance she has. She is the happiest most contented child i have ever met and has been through so much. These opportunities are not available in the United Kingdom and as its a national health service insurance companies just dont exist to help with this treatment so it needs to be funded comletely by the family as well as travelling and living costs to come out here. We have
raised enough money to fund one trip which she is currently undergoing and are so desperate for her to continue with this programmme as even after one week we can see her stregth improving and her chest is clearing where she can actually cough up gunk, this might seem like an everyday thing but isabella has never had the strength to clear her chest which is why she becomes ill so frequently

 

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