Elizabeth is our fourth child.  We were waiting for her birth with great excitement.  Elizabeth was born at 39 weeks.  The delivery was not what I was expecting, it was very chaotic and took a long time, but we don’t know if the delivery is what caused the problems that she is experiencing right now.  As of now the doctors have proposed “seizure disorder”, “cortical blindness”, and “development delay” as her diagnosis. There is no actual proof or test result to show a true diagnosis.  All genetic tests, blood tests, MRI, muscle & nerve biopsy, etc. came back negative, with no explanation for her condition.  

    We noticed her first seizure when she was four weeks old.  At that time we didn’t know if that was her first seizure, because she only had them when she slept.  It looked like she was scared or frightened.   We didn’t know what a seizure was.  We have other three healthy children who are perfectly healthy.  Seizures were getting stronger week after week.  One of the seizures turned into convulsions and we realized that it wasn’t just a fright but something is seriously wrong.  That day we started investigating her condition.   We went to the hospital and our hard journey to discovery began.  We started going to different doctors, therapies, and testing centers for appointments.  After we have done many tests here in United States and no answers were given to us, we decided to travel to other countries like Germany and Russia searching for help. First year Elizabeth had seizures about 10-12 times a day and medicine didn’t work. At that time there was no sleep, no happiness, and no life seeing her suffering. I started researching treatments and therapies that could help my Elizabeth.  I started asking other parents for methods that they know of that could help.  Then we put all our time and finances in trying different methods of treatment.  Some treatments were successful, some were not.  Some therapies stopped her seizures for a period of time; some got her to tone up on her muscles and movements.  Today, Elizabeth is a beautiful twenty two months old girl.  But sadly, she is not sitting, walking, or grabbing anything with her hands. She is not focusing on objects or responding to surroundings.  

    We went to Fort Lauderdale, “Therapy for Kids” center, for three week treatment in October of 2007.  During the treatment she laughed for the first time.  In the end of third week she started making her first sounds.  Elizabeth’s balance dramatically improved and her muscles toned up a lot.  We saw great improvement and benefit from those treatments and therapy.  

    These past twenty two months were extremely hard for our family. We put all our attention and focus on Elizabeth’s wellness.  We have our faith in God and prayers of our friends supporting us in all this.  And we will not stop trying all methods until we see her get well.  As parents, we see that Elizabeth needs this kind of therapy and treatment every day.  We cannot afford this therapy, because it is very expensive.   We will highly appreciate any kind of help and support.  May God bless you.