Hello, I'd like to talk a little about our family, but mostly Isaac. We now have six children (Isaac and Asher are number 4 & 5). My previous pregnancies were uneventful. But this pregnancy was on the rocks from the beginning. At 17 weeks I was diagnosed as having TTTS (Twin Twin Transfusion Syndrome). Shortly after I was sent to a TTTS specialist in NC because Isaac (the recipient) had over 8cm of fluid and Asher (the donor) had under 2cm of fluid and no visible kidneys. Upon examination in NC the doc was able to see the kidneys and the fluids were at the borderline for their criteria to do intervention (other than terminate one or both, which was not an option for us). So we were sent home with a message of having only a 10% chance of even one baby surviving that would be severely retarded and 90% no babies at all.

I continued to be monitored by ultrasound once a week for months while I worked and took care of our other children. Around 24 weeks I began having regular non-dilating contractions so I was admitted and given very aggressive and miserable preterm labor prevention treatments and continuous ultrasounds. One day shy of 31 weeks the ultrasound indicated that Asher had no fluid, so an emergency c-section happened within hours. Isaac 3lbs 13 oz and Asher 2lbs 14oz. They both had ups and downs, all in all Asher is fine. Isaac had grade IV brain bleeds and various other problems. We weren't really prepared for any major problems because it was always presented that there "might" be some brain damage. The first thing noticed was too much muscle tone. Then, we noticed he wasn't tracking or focusing. He began PT and has visits from a CVI specialist. I still kinda felt in the dark so after much research, I asked his doc if it was CP to which he said yes, among other things(he had already been diagnosed with CVI). When Isaac was 13 months old we had another baby, since then I have been a stay at home mom (after the twins came home my husband became a stay at home dad then we switched).

I just recently came across pediatric intensive therapy and am so excited for this opportunity. I never want us having a large family and single income to be a reason why he cannot receive the treatment he needs and deserves. Please consider our family for sponsorship in this program. We will always give back to the best of our ability.

Thank you,
Larry and Heather Trayer

Isaac Trayer
Cerebral Palsy
Cortical Visual Impairment

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